The Speed of Dark

M- has done so well the past few weeks with his cellphone–both making and receiving calls–that I didn’t expect a glitch today.    I phoned him when I reached Austin, to tell him I could pick him up at the bus stop west of Northcross Mall, to take him to supper before ice skating, as it was raining.   R-, who rode with him the first times,  had told me which bus stop he got off at.    I thought M- understood and would repeat what he’d done before. Read the rest of this entry »

Last week, M- soloed on Thursday and a wild Thursday it was.  Today was a completely different after-class schedule–two buses, but not the same two buses, all the way out of the city to the terminus at Leander.    We dropped him off, asked him to call when he got to campus, and again when he caught the second afternoon bus…or if he had a problem. Read the rest of this entry »

You’ve probably heard of this movie.   If not, or if, having heard of it, you had reservations about it (I did), here’s the good news: it’s better than you think.  It’s an incredible, brilliant movie that shows Temple Grandin’s triumph over both the problems autism gave her, and the society that did not have a clue and did not believe autistic people had a future.   And it shows the value of her life’s work, her designs for livestock management.  Because of her, half the livestock facilities in the world–not just here–handle their stock more humanely.  And–(yes, there’s more) it shows how she thinks–because it is a visual medium, a movie can show the pictures she thinks with. Read the rest of this entry »

We’d planned to have a parent ride the buses with M- and be available nearby on campus for the first month…but a combination of things (including M- commenting on the way home one night in the second week that he thought it would be more fun when he could go alone)  led to this morning…we dropped him off at the bus station 20 miles closer to the city, where the express bus runs to downtown.  From there he would transfer to a local headed back north and end up at the campus.   He was supposed to call us from campus when he arrived, which should’ve been about 8 am.

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One of the things many parents wonder about–and worry about–is whether their kid with disabilities will be able to go to college.   It’s pretty easy, sometimes, to come up with a firm “No, sorry, this child will simply never be able to attend college” and at that point concern can shift to other ways to prepare the child for adult life.  And sometimes it’s pretty easy to see that a given child will be able to–colleges now accommodate students in wheelchairs, for instance, much better than they did fifty years ago, when simply being unable to walk unaided barred wheel-chair bound students who could not reach classrooms or labs or rooms in the dorms.

It’s the borderline ones–the “maybe” cases–that cause parents the most angst.  I know, because I have one of those.    And yet…in time, with enough hard work from everyone involved…sometimes “maybe” turns to “yes.”   Yesterday we had a taste of “yes.” Read the rest of this entry »

Sometimes I feel like jumping up and screaming “FINALLY!” at the research end of things.   This summer there have been several really good research reports, some mentioned in national media as well, on autism-spectrum issues.  But what I want to highlight tonight is the one that sparked the “FINALLY!” reaction.

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Today I gave a presentation on The Speed of Dark over the internet to a group at Howard Community College in Maryland–while sitting on a comfortable couch in Texas.  Technology has advanced to this point, and I wanted to try it–besides, I knew I would not be able to travel to Maryland in person in the time-frame they wanted.

What fascinated me, besides playing with technology I didn’t know, was the degree to which this particular setup messes with sensory input.   I had a light-bulb moment when I realized that the audio breakup (just enough of one) and the blurriness of the faces looking back at me–blurry enough that I could not see any of the usual cues of facial movement–and the delay between when I said something and when they saw/heard me say it–all made my experience more autistic than I’d expected.   I was having to put way more energy and concentration into figuring out their reactions, and what they were saying than usual.

The organizer sent email telling me that discussion went on in the hall after I “left”, which is a good sign.   I hope it was as valuable for them as it was for me.

This was originally a post over at my LiveJournal, but generated so many comments that I thought it might be of even more interest here.  I copied & pasted, which seems to have preserved the LJ font size (and I haven’t a clue what to do about it…or why, when I posted this and then looked at it, only one paragraph is “that” size…)  Over there (for anyone who wants to go look and read the comments) the title is Language and Autism.   I have invited the people commenting there to consider coming here and continuing the discussion.

Our son did not learn to talk early, and for years after he said his first word (many years) his syntax was odd enough to make his speech barely intelligible to most people.   Though it has improved a lot, he still gets “tangled’ sometimes, and often “mazes” (repeating parts of a sentence several times.)   It’s clear to me that he’s constructing the sentences in chunks, and has to repeat every chunk to get the whole thing out at the end (like those songs where you have to repeat a key part of previous verses–Old MacDonald’s Farm, for instance.)

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When our son was just beginning to be verbal, and able to say words with a consonant on each end,  one of his therapists suggested we introduce him to rhyming words as a way of training his ear and his speech…extending the consonants he could say,  and so on.

This certainly helped, and he began to try out combinations himself (which was good) except for one little problem.   If you start rhyming one-syllable words in English…starting from harmless familiar words like for instance “bit” and “pit” and “sit”….you end up with words that are considered inappropriate for small children to say.   The child may never have heard those words, the ones that rhyme with “sit” and “bird” and so on, and have no idea what they mean…but if your larger-than-average, older-than-average-when-learning-to-talk autistic child says them,  social disapproval rains down all over the scene.   And autistic kids don’t need any more social disapproval than they get already.

So the day came when our bright-eyed little guy very proudly (and it was an accomplishment–he had just managed the /sh/ sound the week before)  went through his “–it” words and added “sh*t.”

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Uneven development across various cognitive domains is more common than most people realize, but people with autism usually show extreme unevenness.    Anyone working with autistic children needs to be aware of these extremes–and mapping developmental levels in each domain can help target interventions to that particular child’s actual needs.    These interventions should not be aimed at raising the child’s gaps to equal his talents–or stifling the talents to the level of the gaps.  Instead, the goal should be to scaffold progress in each domain from where the child actually is, at the best rate that the child can manage in each.

I learned this first as a tutor, coming in to rescue a child who had started failing in a subject or had some other problem.   To do my job, I needed to find out what the child knew, what the child thought he/she knew, and what had gone wrong–as fast as possible and while building a working relationship with that child.

How do you approach this problem?   It starts with careful, precise observation of the child’s current behaviors in each domain.  Big sheets of graph paper help both the mapping and charting progress.   An ordinary “baby book” that gives general information about normal development allows parents to do at least a rough approximation themselves.

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